Hi Everyone!
One word of bad language at the end of this post.
A beautiful young woman from one of my lupus FB groups, passed away from complications of lupus. Of the people I know with lupus, she is the 4 this year.
The reality is, on average, 10 to 15%
of people with lupus die each year according to the CDC. Like so many other autoimmune diseases, you don't die from the disease itself. You die from complications caused by the disease.
Lupus attacks every part of a body, inside and out.
Cardiovascular disease is the most common cause of death in people with lupus. kidney failure is second and infection is third highest. Other complications that
lupus can affect, possibly, leading to death are neurological problems, blood disorders, and cancer.
I
have said this before, I have had family members and so called friends
tell me that I must not have a bad case of lupus. Or that I don't have
it at all because I don't look sick. You don't have to look sick to have
a disease eating your insides to death. Or tell me how to raise my energy level with B12 and herbal tea, or tell me, If I would just change my life style and eat the Mediterranean diet, I will be cured. I used to be nice about it and try to explain it.
(a waste of my time)
For the last 10 years, I tell these same people to just go fuck yourself.
In 2014 the life span for about 80% of people with lupus was 5 to 10 years. Today with treatments and new medications 85to 90% of people with lupus will live a normal life span. It might no be the best life but it's life.
Today I woke up to this. Meaning, I am in the beginning of a flare. I have a medication of cream for my face and I will start some prednisone.
These little blisters hurt and will get bigger if I don't take care of them.
I hope that from all of the information I have posted this month that you have learned about lupus. That if you have any symptoms you will talk to your doctor and insist on blood work and a UA. If you know someone with lupus you now have a better understanding and can have a conversation with that person.
There were a few more things I wanted to share with you and maybe I will later.
Wishing all of you good health.
Nicole