Showing posts with label Lupus day 21. Show all posts
Showing posts with label Lupus day 21. Show all posts

Thursday, May 22, 2025

Lupus Day 21

 Hi Everyone!

There are a few things that people with lupus don't like to talk about. One of those is depression, anxiety and mood swings. But mostly depression.

In the very beginning when I was extremely sick. Not one doctor would help me, not one doctor would listen to me, not one doctor saw me. I was invisible. Doctors didn't look at me, they read the blood work or looked at scans and then would tell me nothing is wrong. I had several doctors tell me I was faking it, that I was vying for attention because I was pre menopausal. Then they would prescribe meds and tell me to come back in 6 months.
Because NO ONE could or would tell me what was wrong with me, when I was so damned sick, eventually caused me to be depressed. It can be a warm fuzzy place. An escape where no one expects anything from you including yourself. Depression sleep is deep and dark and lovely. Waking up is upsetting and cruel to the human mind. Depression can last for years. If it does one can be lost in it forever. For me I had Mr. M. my mom, and a brother that helped me. After a few months of feeling completely defeated I had a clear day in my brain. I gave Mr. M. instructions on the herbs I needed to clean my body and mind. A few months later I was feeling better and ready to fight the fight. I was and still am lucky. I am not a depressed person by nature and even though I have had a few pity parties I have not been touched by depression since. That is not the case for everyone.
Along with depression and anxiety are mood swings. Mr. M. calls my mood swings, 
"bitch flips."
In a sing song voice he will say, "Ohhh honey your having a bitch flip, calm down." It's actually quite funny. I get over what ever I am upset about and we try to laugh.
So if you know someone with lupus or other autoimmune and you notice depression try to help if you can. Sometimes just an encouraging word will make all the difference.
Lupus truly sucks!
 
Nicole