Hi Everyone!
This AM in my email I received my regular news letter from the lupus foundation of America. WOW! the first thing was the news that the FDA has approved the subcutaneous administration of Saphelo for treatment of people living with moderate to severely active lupus (SLE) The 120 mg dose is administered once weekly via auto injector. This goes along with regular standard medications and treatment. Right now for people using Saphnelo it is a hospital visit where an IV is inserted and an infusion that takes over 30 minutes. It's usually done once every 4 weeks. The next great thing is that private insurance, medicare and medicaid will cover it.
There are symptoms with the pen too. But it is a game changer for those who use this medication.
Now what the heck is Saphnelo?
Saphnelo is a biologic that reduces disease activity across the different parts of the body
and organs that lupus can affect, including improvements to the
muscles, joints, and skin. Saphnelo is the only FDA-approved biologic for adults with moderate to
severe lupus that’s proven to significantly lower steroid use. Some patients taking Saphnelo had fewer flares compared to those who did
not have Saphnelo added to their other lupus medications.
There is other great news for people living with cutaneous lupus erythematosus (CLE)
However, I'm so exhausted I can't write anymore.
Have a nice Saturday.
Nicole.
If you want to read more about Saphnelo you can do it here.
13 comments:
To research and progress is all I can say. And to more. To health or a better living? I sure am so far very lucky and I know this! Ingo suffers with his rest-pancreas, my Niece has diabetis1, but even that is "nothing".
Glad some have the mind to put this and money into research for people and Mother Earth instead of going to the Moon and Mars...
As the world degrades in so many ways, science still does marvellous things.
And why don't you use this? It sounds promising ... and I agree, it is good news for many. So I hope that you are resting someplace comfortable as I write this. I know what it feels like to be tired ... time for a nap, right?
Andrea @ From the Sol
That's really good news. And nice to know in case they ever put on you this one.
...that's fabulous news!!!
Good news indeed ... continued research is so important.
All the best Jan
That's fabulous news. Even better that medicare covers it since so many of these new injections they don't.
This is very good news.
That is really good news for those that can used the drug. I'm sorry to hear you are very tired and I guess most of us would be after driving and shopping plus the appointment to the Dr. for your husband. Take care.
That is great news. Even though you don't use it now, if you needed it in the future, it would be much easier to do a pen injection than to go for an infusion.
Dear friend Nichole,hope you’re feeling better today
And hope and pray that Mr M’ s treatment went well by grace of God!
The medication you mentioned sounds very helpful for patients of lupus
I hope people will find it easily everywhere 🤞
Stay healthy precious friend ♥️🙏
Good news
That's good news. We are lucky and live within 30 minutes drive of several big hospitals. Parking, though, on the other hand is a nightmare at these hospitals! :-D
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