Wednesday, May 13, 2026

Lupus Fatigue and brain fog.

 Hi Everyone!
Well the last few days have been in lupus fatigue.  I could barely get out of bed. However, I had to go to the dentist for a teeth cleaning, and do some grocery shopping. Thank the gods Mr. M. goes 
with me. 
This image is so true. 
Lupus fatigue is like a battery that has gone dead. Naps don't help, Vitamins don't help, in fact vitamins can actually hurt someone with lupus. One time I had a lady tell me to drink orange juice for the fatigue. I just laughed and walked away. I can sleep 16 hours and still my entire body is done. There is no strength to even get out of bed.  I, like so many other's with lupus, force myself to get things done. That doesn't always work either and can bring on lupus brain fog. But I don't have to be fatigued to have brain fog. LOL. It's not old age, it's not dementia, it's actually inflammation in the brain.
 
I know what I want to say but just can't find the words. Or I will be in the middle of a sentence and I can't think of the next word. The brain fog upsets me most of all, especially in public. People can be pretty mean. At home Mr. M. and I laugh about it. Hey, if I don't laugh I will cry and I don't want to do that. I don't want to feel bad or sorry for myself and I don't want anyone else to either. 
If you know someone with lupus be there for them. Ask questions, don't give advice. Offer to help, but don't just take over. Include them in get togethers but don't pressure them if they say they can't make it.  There is a good reason for it.


Have a good evening!
Nicole
 P.S. Yeah I know whoever made this meme didn't spell purse correctly. 😁

19 comments:

My name is Erika. said...

Thyroid fatigue was bad, but at least there's a pill that helps. This sounds like a tough thing to deal with. Of course, there's so many tough things to deal with with lupus, isn't there? Hope you are having a feeling better week Nicole. hugs-Erika

Margaret D said...

Good advice there Nicole, so many people come with advice and really wouldn't have a clue for they are not in your shoes. Take care.

Anvilcloud said...

I recently had a day when I had to drag myself around, so I can imagine how terribly difficult it must be to have many days like this where rest doesn’t even restore you.

Tom said...

...make each and every day the best possible.

Debra She Who Seeks said...

That kind of prolonged, bone deep weariness sounds very distressing. Plus brain fog? Not fun.

jabblog said...

It sounds similar to ME. Some days are worse than others and there's no predictability.

Debra said...

Nicole I'm sorry this is part of your life. But your strength is contagious, and I need that right now for some things I'm facing. When I can, I'll blog about it. Thanks for being strong. Love ya...

Ananka said...

Hopefully you feel better soon and feel less tired! :-D

Anonymous said...

Feel better soon-Christine cmlk79.blogspot.com

Linda's Relaxing Lair said...

Nicole, bless your heart. I am so sorry that you are living with this. Thank you for sharing about this.

Jeanie said...

Fatigue is the worst, isn't it? Life doesn't stop but the energy does. I know you are treating yourself gently -- at least I hope so.

Luiz Gomes said...

Boa tarde minha querida amiga Nicole. Através do seu Blogger, conheci um pouquinho sobre o lúpus. Sei que é uma doença muito séria. Uma excelente tarde de quinta-feira e um grande abraço do seu amigo carioca, que amanhã fará aniversário.

Lowcarb team member said...

Sending good wishes and hoping you feel better soon.

All the best Jan

Michelle said...

I am glad you have the support of your spouse.

Rostrose said...

Dear Nicole, lupus really does throw a lot of obstacles in the way of those affected. I'm glad you're a warrior, but I can also understand that constantly fighting is exhausting...

Hugs and all the best from Austria, Traude

Bleubeard and Elizabeth said...

I can relate and know exactly what you are going through. Glad you have a support system (husband) at least. There are days I wish I had someone to rely on when my lupus flares up.

Modrina Neba - Blue Sky said...

Olá, não desejo isto a ninguém, compreendo-te, eu tenho Fibromialgia, dores por todo o corpo, não é agradável, não é.
Desejo-te um dia calmo e ensolarado.
Abraço!!!

David M. Gascoigne, said...

Thankfully, no one in my circle has this dreadful condition, but I have been pleased to become more informed about it. It really is awful.

https://linsartyblobs.blogspot.com said...

Sorry to hear that you're going through a really rough time, hope you are feeling better soon.