Hi Everyone!
One word of bad language at the end of this post.
A beautiful young woman from one of my lupus FB groups, passed away from complications of lupus. Of the people I know with lupus, she is the 4 this year.
The reality is, on average, 10 to 15%
of people with lupus die each year according to the CDC. Like so many other autoimmune diseases, you don't die from the disease itself. You die from complications caused by the disease.
Lupus attacks every part of a body, inside and out.
Cardiovascular disease is the most common cause of death in people with lupus. kidney failure is second and infection is third highest.
Other complications that
lupus can affect, possibly, leading to death are neurological problems, blood disorders, and cancer.
Or tell me how to raise my energy level with B12 and herbal tea, or tell me, If I would just change my life style and eat the Mediterranean diet, I will be cured. I used to be nice about it and try to explain it.
(a waste of my time)
For the last 10 years, I tell these same people to just go fuck yourself.
In 2014 the life span for about 80% of people with lupus was 5 to 10 years. Today with treatments and new medications 85to 90% of people with lupus will live a normal life span. It might no be the best life but it's life.
Today I woke up to this. Meaning, I am in the beginning of a flare. I have a medication of cream for my face and I will start some prednisone.
These little blisters hurt and will get bigger if I don't take care of them.
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I hope that from all of the information I have posted this month that you have learned about lupus. That if you have any symptoms you will talk to your doctor and insist on blood work and a UA. If you know someone with lupus you now have a better understanding and can have a conversation with that person.
There were a few more things I wanted to share with you and maybe I will later.
Wishing all of you good health.
Nicole
15 comments:
Very sad. May her memory be a blessing.
Whaddya mean the Mediterranean diet can't cure everything, LOL? Seriiously, thanks for all the important info this month. I've learned so much about lupus that I didn't have a clue about before.
I am so sorry to see that you are having a flare. It sucks that people can't understand that some illnesses don't show on the outside.
...Nicole, keep educating and fighting. Be well.
This has been such a revealing and personal month of posts Nicole, and I really appreciate all you have shared. I have known people with Lupus before but never much about it. Now I feel much better informed. I hope the flare is a short one and things ease back again soon. Hugs.
Thank you for educating your readers about lupus. Yes, it's serious and it's heartless for people to say you don't look ill to their eyes. They don't get to stay in your life. I'm so sorry about your young friend, such a loss.
My cousin's wife has lupus, currently in hospital with a bout of pneumonia, always a worry.
Bom dia. O mês de maio terminando e aproveito para desejar um excelente mês de junho. Obrigado por nos chamar a atenção, por um tema muito importante, minha querida amiga Nicole.
So sorry for your friend and so mad many do not "believe".
Very, very, very minor but when my bone rotted away doctors told me "healing hurts" and I should go swimming. I took my pocket money to buy pain killers cause also my parents didn´t believe I am in pain, that something is very wrong.
Hang in there ~ You are one strong and creative woman ~ hugs,
Wishing you good health, laughter and love in your days,
A ShutterBug Explores ~ clm
aka (A Creative Harbor)
I am sorry that you lost a good friend.
My nephew was recently diagnosed with Lupus after such a longtime of being put off. It is very real.
Wishing you well, Nicole.
Empathy is scarce! I think you have touched many readers. Definitely me.
My best friend's sister has had Lupus for as long as I can remember and I know it's not easy to deal with.
So sorry about your friend!
My thanks for all the information you have been sharing about Lupus ...
All the best Jan
Sorry about your friend. And thank you for posting all that information about lupus, it's been very educational.
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