Tuesday, May 6, 2025

Lupus Awareness day 6

 Hi Everyone!
 We just got home from our monthly Salem drive for Mr. M's doctor appt. It is always a long, tiring day for us.
However here is the day 6 fact about lupus.
I will be honest I didn't know this fact. I did know that there are approximately 1.5 million people in the US with a form of lupus and about 5 million world wide. 90% of people living with lupus are women. There are a lot of misconceptions about lupus, here are just a few. 
Myth: Lupus is a form of cancer.
Fact:  Lupus is an autoimmune disease, meaning the body's immune system mistakenly attacks healthy tissues and organs, not a type of cancer. While people with lupus may have a slightly increased risk of certain cancers, it's not a direct cause-and-effect relationship. 
 
Myth: Women with lupus cannot get pregnant.
Fact: Many women with lupus do get pregnant a have healthy babies. It is important to have and obstetrician that understands lupus.
 
Myth: Lupus is curable.
Fact: There is NO cure for lupus, but it can be managed effectively through various treatments. 
 
Myth: Lupus is like AIDS.
Fact: Women, men, and children with HIV/AIDS have underactive immune systems, which means that they can’t fight infections. If you have lupus, your immune system reacts in just the opposite way: It’s overactive and attacks healthy tissues, instead of ONLY attacking pathogens. That's why if a person with lupus gets sick it can be fatal. I never leave my house without a mask.
 
Myth: Lupus is contagious and can be spread through contact
Fact: Lupus is not contagious and cannot be transmitted through physical contact. 

 
Myth: I really love this one. People with lupus should avoid all exercise.
Fact: Regular exercise can actually be beneficial for people with lupus, helping to improve their physical and mental health. However, it's important to discuss exercise plans with a healthcare professional to ensure they are safe and appropriate for the individual's specific needs. 
I think most of you know I exercise everyday. Weather it's dancing, air boxing, gardening, walking or playing WII tennis. Even if I hurt I start moving and when I'm done I feel so much better. I have had friends with autoimmune that told me they couldn't exercise. That they hurt too much. I'm sure you know what my reaction was.....There are so many ways to get moving without even getting out of your chair. And that pain.... will subside or be gone.
I have to throw this in. My grandmother passed at 104 years. Everyday she would sit in her chair and exercise her arms with 3lb weights. Then she would get her stationary bike peddles and exercise her legs for 5 miles. She said no matter what your age, move, move, move. 

I hope this gives you more in site on lupus
Nicole
 

15 comments:

Gene Black said...

Interesting. And the advice on moving is spot on.

Tom said...

...keep moving, my friend.

Debra She Who Seeks said...

Good to dispel those myths! I didn't realize lupus was so common. We really do need to pay more attention!

My name is Erika. said...

I agree with your grandmother 100%. We evolved to move and you need to keep doing that. Especially if you aren't someone who is inclined to move. Thanks for the myths and facts today. I didn't know lupus was that prevalent.

Jeanie said...

I've really appreciated your lupus posts. I've know several people with lupus -- and most of the info you've shared has been new to me.

Boud said...

That moving even in pain is hard and true! We're built to move. But yes it's hard when you start out feeling stiff and owie.

Christine said...

Interesting how prevalent lupus is. -Christine cmlk79.blogspot.com

peppylady (Dora) said...

Now I wonder how many Autoimmune disease are they.

Bill said...

Moving around everyday is the best exercise for people. I love walking and need to keep it up.

roentare said...

Thank you for sharing these important lupus facts and myths. It's eye-opening to learn how often lupus is misunderstood—as an autoimmune disease, not cancer or contagious—and how vital movement is, even with pain

Iris Flavia said...

It is scary, really. But, of course, move!

baili said...

Thanks for sharing more knowledge about lupus dear Nichole 👍
I am glad to chose to clarify myths about facts this time. This is really important because people stuck to myths avoid actual ways that can manage the disease
I also felt so impressed by your grandma who did her work out on chair hats off to her inner strength 👌🤗♥️
It is also good for know that you do exercise regularly
Sending you heartfelt best wishes

Luiz Gomes said...

Boa tarde e uma excelente quarta-feira, com muita paz e saúde. Excelente matéria de divulgação e conscientização.

Lowcarb team member said...

Many thanks for this and all your Lupus Awareness posts.

Great advice from your Grandmother when "she said no matter what your age, move, move, move."
Yes, 'Motion is Lotion' to our bodies! It's so important to move it as much as we can, obviously dependent on our age, health and mobility.

All the best Jan

Rita said...

I hadn't even heard any of the myths. You are providing a lot of good information. :)