Monday, May 12, 2025

Day 12 lupus awareness

 Hi Everyone!

This is day 12 of lupus awareness.

made by me

  Some things brought to you from lupus LOL
Lupus causes wide spread inflammation. This includes internal organs, as well as external organs. To mention a few, the skin, eyes, and lips, Yes, lupus doesn't play favorites it can affect every part of your body. For the lips they can become swollen, red, and just hurt. Several things can cause this and it is worse during a flare. For me it is the dreaded sun. I have to really protect my face when I'm out.  This photo is from google images and is pretty tame compared to the other photos. I don't want to upset anyone. You can always to google and check it out. Along with this can be mouth sores.

Swollen eyes. I have a real problem with this and especially now with the sjogrens. 
Before I knew I had lupus, I woke up and my left eye was drooping down the my cheek. I thought I had had a stroke. But that was not it. For me the drooping eye, called ptosis never left me. It looked something like this only more sagging down my face. 
again the image was on google and one of the more tame photos

There are several eye problems with lupus.
In 2014 my eye did this. 
and turned to then this 
and finally this

At the time I was sent to several doctors had a boat load of blood work done and an MRI on my brain and orbs. The only thing I remember is that everyone was worried about the bleed. Of course all of my labs and MRI came back normal, well my normal. That's how it is with lupus. You will have physical evidence that something is wrong but nothing shows up on testing. The doctors don't know what to do. 
It's storming horrible out and I need to get off the PC. 
Thanks for reading about lupus.
Nicole

11 comments:

Tom said...

...a perplexing situation!

Anonymous said...

Seeing that dry eye is one of the possible issues is “interesting “ as I have been suffering with dry eyes for a few years now.

My name is Erika. said...

I get these symptoms with my chronic Urticaria (hives). Not usually on my eyelid, but on my lips and under my eyes. TRhe ones you show here are like mine now that I'm not covered in welts, but I still get these. It's not fun! Thanks for sharing Nicole. hugs-Erika

Luiz Gomes said...

Bom dia com muita paz e saúde. Uma excelente segunda-feira minha querida amiga Nicole.

CAAC said...

You just never know the extent of chronic diseases such as this until someone shares about it or you're dealing with it yourself. My aunt has Lupus. It certainly doesn't sound like much fun but then are there any medical issues that are? Nope! While I have problems, I consider myself quite healthy and am totally grateful for this blessing. Prayers to you always that Lupus keeps its head down and less bothersome for you, my dear! xo

carol l mckenna said...

Lots of good info here and sending lots of healing energy hugs to you,

Wishing you good health, laughter and love in your days,
A ShutterBug Explores ~ clm
aka (A Creative Harbor)

Giorgio said...

Information I didn't know about Lupus that can affect many organs. Thank for writing down such interesting post, Nicole.

Bill said...

Thanks for sharing all this info that I never knew about.

Jeanie said...

I'd like to think they know this but I have a feeling every doc should be reading your collection of posts here. Maybe it would be diagnosed sooner.

Christine said...

Thanks for sharing!

Rita said...

You are teaching me new things every day. I'm glad you are posting these things. I especially hope someone with lupus reads them so that if anything similar happens to them they won't be surprised. You have really been through the mill, my friend.