Hi Everyone!
May is Lupus
Awareness Month. Some people call lupus an “invisible illness” because
it is often not recognizable to others. CDC and partners are working to
make lupus visible by raising awareness about this disease.
The exhaustion of lupus is NOT, just that one needs a nap, it is all encompassing. Moving hurts and feeling lousy just doesn't come close. It is a depletion of everything inside.
I have lost my hair twice to lupus, right now every part of my body hurts and I can't go out into the sun unless I have lots of sunscreen and a big hat. Ohh I look so cute. LOL
So far my heart is fine.
However, I do have kidney problems.
The word lupus (from the Latin word for wolf)
is attributed to the thirteenth century physician Rogerius, who used it
to describe erosive facial lesions that were reminiscent of a wolf's
bite. Lupus is a chronic autoimmune disease that can damage any part of
the body from the skin to any of the internal organs.
I made this one from AI
Nicole
12 comments:
It sounds like there is just so much to endure with lupus. What a terrible condition!
...Nicole, I send you my best wish for good health.
With fibro I have the all-over pain and exhaustion where you are just drained of energy, but not the rest. I remember my doctor telling me back when I got diagnosed that I was lucky I didn't have lupus. So very, very sorry that you do, my friend.
I call those days where it is really bad my noodle days. Where you are so weak and sore and drained that it feels like you have no bones in your body to move...like my body and brain are limp as a noodle...plus in constant pain. *gentle hugs* *more gentle hugs*
You're doing so fine. Thank you for educating us all about lupus. I know several people, two now old, one very young, dealing with it. Lifelong management. They're skilled at being their own healthcare manager and expert. I wish none of you had to.
Some of those lupus effects are horrible. What a horrible disease. 50% of lupus patients going into kidney failure is really scary!
Thanks for sharing
I have known people with Lupus and I can vouch for the fact that its impact can be devastating. You have my deepest sympathy. All the best - David
It sounds so darn scary. I am thankful I so far am healthy.... I wish you strength...
Thank you for sharing more about Lupus. You see to do so much and I really admire that because I know it must be terribly difficult.
Once upon a time, I worked in hair replacement. We had one lupus patient with alopecia areata (baldness in spots) She was my first exposure to someone with lupus.
Be strong my friend and love yourself.
Thanks for sharing the effects of lupus on your body.
I hope you stay strong and your condition improves.
Lupus can manifest itself in so many ways, and all are devastating. You have my deepest sympathy.
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